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AML & Climbing - a random info thread. 17-Jan-2023 At 1:04:51 PM IdratherbeclimbingM9

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Some more random bits and pieces …

I’ve had an incredibly good outcome and the whole process thus far regarding the marrow transplant was very straightforward in my case.

Day 12 was rough with my temperature spiking to 39 C, but by Day 14 I dared to allow myself the luxury of believing I’m through the trough - like reaching a point in a hard runout lead climb where you know that you’re going to topout but it’s not in the bag yet.
I actually got excited about it at 2.30 am and couldn’t get back to sleep!

I’m on immunosuppressive drugs, particularly cyclosporine (amongst others), that keep my recovery rate within tight thresholds. Kind of like growing a lawn evenly with the immunosuppressive elements trimming the random get ahead of the evenness elements.

Jury duty debacle.
My wife received a Jury Duty notice.
She replied requesting a deferral on the basis that I have leukaemia and she is my nominated carer outside of hospital, and it was granted.

Soon after I received a Jury Service notice.
I requested a deferral on the basis that I have leukaemia and am in hospital for the period involved.
It was knocked back!!!

The situation was resolved with a phone call to ask why I was knocked back, and a followup medical certificate from the hospital Haematologist.

Birthday cake event.
During the Bone Marrow Transplant period I had my calendar birthday, as compared to my rebirth birthday of receiving the marrow transplant.

Unexpectedly I was surprised by a dozen nurses at my ward door holding a large chocolate coated ice cream cake and singing happy birthday to me!
They asked me to plunge a knife into it and make a wish, which I did, and they departed to complete the cutting it up process.
They didn’t return!
In their excitement they divided it up in the tea-room but forgot to return with a piece!
I was later given a golden gaytime paddle pop as a token of their oversight!
It caused me to chuckle somewhat as I appreciated the thought, and am more than happy to acknowledge by donating my piece to the hard working angels that they are.
:-)

To sum up:
At the 6 month mark I’m making good progress so cautious optimism abounds, with an awareness that for the next couple of years I’m still in a fragile situation that can go bad quickly.

Oh, and my hair is growing back already!